Local Families Affected By Rare Disease To Host Awareness Walk Later This Month

LAKEWOOD – Several local families affected by Lennox-Gastaut Syndrome will host an awareness walk later this month at the Chautauqua Mall.

Darla Davison, whose son Aaron suffers from severe seizures related to the disease, says the walk will take place on Saturday, February 29 at noon.

“There are currently seven families in our area affected by this disease who have come together for mutual support and encouragement,” said Davison. “We also have a goal to raise awareness and funds for research, in our community, for those affected by this devastating disorder.”

Davison’s son was first diagnosed at two-and-a-half years old after he had his first of many seizures.

Since New York State recently legalized medical marijuana, Davison says Aaron’s condition has drastically improved.

The national LGS Foundation was recently awarded the Chan Zuckerberg Initiative grant to help further research for the rare disorder.

Saturday, February 29 is Rare Disease Day. Davison encourages the community to join her group at the mall to show support for the impacted families.

Donations can be made here.