FALCONER, NY (WNY News Now) – A local infant, who’s story rallied our community’s support after she was diagnosed with a very rare genetic disease, has passed away.
After suffering her first seizure earlier this year, baby Scarlett Bush was diagnosed with Zellweger syndrome, known as ZS, a genetic disorder found in newborns that severely impacts her nerves and metabolism.
The condition caused poor muscle tone, seizures, and a shortened life expectancy.
We met Scarlett and her parent’s, Erica Webster and Dane Bush, over the summer as they rallied for the community’s support to help support their daughter, known to her loved ones as Letti.
“Our sweet girl has earned her wings. We will love and miss her forever. Thank you from the bottom of our hearts for your support,” wrote her family in a statement on Tuesday. “Scar, Scarlett, Letti, Letti spaghetti, pumpkin pie ….. forever loved”
Since the baby’s passing overnight Tuesday, a GoFundMe page has been launched to help cover funeral expenses.