Family Using Benefit To Raise Awareness On Rare Disease


App users tap to watch video report.

JAMESTOWN, NY (WNY News Now) – A new parent is grieving the loss of one of her newborns as a rare disease affected her pregnancy. Now the family is planning on raising awareness for the debilitating blight that ravaged the homestead.

Four days after delivery, tragedy struck the family as baby Madalynn passed away. During the pregnancy, it was discovered that Mikaela has a rare blood disease, Hereditary Hemorrhagic Telangiectasia. The family is now hosting a benefit to not only raise funds to cover hospital costs, but also raise awareness of this rare and scary disease.  





“On December 21, Mikaela was admitted to the hospital at 24 weeks pregnant with twins. She found out that she had a rare medical condition known as H.H.T which also causes A.V.Ms. Due to her health complications, she was able to carry the babies to 30 weeks. At 30 weeks, they decided that her health was at risk and they decided they needed to deliver the babies,” said family member Cheryl Hand.

Unfortunately, the disease was passed from mother to children.

“They were both born with the same rare disease and the baby girl passed shortly after she was born from that disease and Myles still has complications because of this disease. So the benefit is for medical bills, the doctor’s appointments in the future, there’s going to be more surgeries for Mikaela and for Myles in the future,” Hand explained.





















The family now wants to educate more people about H.H.T in hopes of preventing tragedy for others.

“She was born with it and we didn’t know until she was pregnant. The common things to look for with that is nosebleeds that occur often, they could be mild to severe. They look like little small dots and when you press on them they turn white, so those are some of the things to look for for the H.H.T and if anybody was to have those kind of symptoms they should try to figure it out with their doctor,” Hand said. 

The Bennett family wants to express their thanks to the community for coming together with overwhelming support.

“Thank you is not a big enough word to express the thanks that we have for everyone who has been involved,” said Hand. 









The Bennett family benefit will be held this Sunday at the Celeron Legion in Jamestown starting at 1 p.m. The Spaghetti dinner is 10 dollars a ticket, kids 5 and under are free. To purchase tickets, you can contact Mikayla Fardink at (716) 708-9342.

 

151 Comments

  1. When I initially commented I clicked the “Notify me when new comments are added” checkbox and now each time a comment is added I get three emails with the same comment.
    Is there any way you can remove me from that service? Many thanks!

  2. Link exchange is nothing else however it is just placing
    the other person’s blog link on your page at suitable place and other person will also do similar in support of you.

  3. I’m not sure exactly why but this weblog is loading
    very slow for me. Is anyone else having this problem or is it
    a problem on my end? I’ll check back later on and see if
    the problem still exists.

  4. Hmm is anyone else experiencing problems with the pictures on this blog loading?
    I’m trying to figure out if its a problem on my end or if it’s the blog.
    Any feedback would be greatly appreciated.

  5. Fantastic site you have here but I was wanting to know if you knew of any community forums that
    cover the same topics talked about here? I’d really love to be a part of group where I can get comments from other experienced people that share the same interest.
    If you have any suggestions, please let me know.
    Appreciate it!

  6. Fantastic blog you have here but I was curious if you knew of any community forums that cover the
    same topics discussed here? I’d really love to be a part of online community where I can get feedback from
    other experienced people that share the same interest.

    If you have any suggestions, please let me know.

    Many thanks!

  7. It’s a pity you don’t have a donate button! I’d most
    certainly donate to this brilliant blog! I suppose for now
    i’ll settle for bookmarking and adding your RSS feed to my Google account.
    I look forward to brand new updates and will share this blog with my Facebook group.
    Talk soon!

  8. Amazing blog! Do you have any hints for aspiring writers? I’m planning to start my own blog soon but I’m a little lost on everything.

    Would you propose starting with a free platform
    like WordPress or go for a paid option? There are so many options out there that I’m completely
    overwhelmed .. Any suggestions? Bless you!

  9. Thanks for every other informative blog. The place else could I am getting that
    kind of info written in such an ideal way? I have a project that I am just now running on, and I have been on the
    glance out for such info.

  10. Hello very cool site!! Guy .. Excellent .. Wonderful ..
    I’ll bookmark your site and take the feeds also?
    I am glad to seek out so many helpful information right here in the put up,
    we want work out more techniques in this regard, thanks for sharing.
    . . . . .

  11. Undeniably consider that which you stated. Your favourite reason appeared to
    be at the net the easiest thing to understand of.
    I say to you, I certainly get irked even as folks think about issues that they plainly do not recognise about.
    You controlled to hit the nail upon the highest as smartly as defined out the
    entire thing with no need side effect , folks can take a signal.
    Will probably be back to get more. Thanks

  12. It’s amazing to pay a visit this website and reading the
    views of all colleagues regarding this article, while I am also eager of getting familiarity.

  13. I’m not that much of a internet reader to be honest
    but your blogs really nice, keep it up! I’ll go ahead and bookmark your
    site to come back later. Cheers

  14. Have you ever thought about writing an e-book or guest authoring
    on other sites? I have a blog based upon on the same information you discuss
    and would really like to have you share some stories/information. I know my viewers would
    appreciate your work. If you are even remotely interested, feel free to shoot
    me an e-mail.

  15. Your style is really unique in comparison to other people I’ve read stuff from.
    Thanks for posting when you’ve got the opportunity, Guess I’ll just book mark this blog.

  16. First off I want to say excellent blog! I had a quick question which I’d like to ask if you don’t mind.
    I was curious to find out how you center yourself
    and clear your mind prior to writing. I’ve had a tough time clearing my thoughts in getting my thoughts
    out there. I do enjoy writing but it just seems like the
    first 10 to 15 minutes are usually wasted simply just trying to figure out how to begin. Any ideas or hints?

    Thank you!

  17. Unquestionably believe that that you said. Your favorite reason seemed to be on the
    web the simplest factor to keep in mind of. I say to you,
    I certainly get irked while other people think about worries that they just don’t
    know about. You managed to hit the nail upon the top and outlined out the entire thing without having side effect
    , people could take a signal. Will likely be back to get more.
    Thanks

  18. When I initially commented I clicked the “Notify me when new comments are added” checkbox and now each time
    a comment is added I get four emails with the same comment.

    Is there any way you can remove people from that service?
    Thanks!

  19. My brother suggested I might like this website.

    He was totally right. This post truly made my day.
    You cann’t imagine just how much time I had spent for this info!
    Thanks!

  20. Attractive element of content. I simply stumbled upon your blog and in accession capital to assert that I get actually
    enjoyed account your weblog posts. Any way I’ll be subscribing in your feeds
    and even I achievement you access constantly fast.

  21. It’s really a nice and helpful piece of information. I’m glad that
    you simply shared this useful info with us. Please keep us
    up to date like this. Thanks for sharing.

  22. You really make it seem so easy along with
    your presentation however I find this topic to be really something which I think I would never understand.
    It seems too complex and extremely large for me. I’m having a look ahead for your subsequent put up,
    I’ll attempt to get the hold of it!

  23. Greetings from Idaho! I’m bored at work so I decided to browse your site
    on my iphone during lunch break. I really like the information you present here and can’t wait to take a
    look when I get home. I’m shocked at how fast your blog loaded on my
    phone .. I’m not even using WIFI, just 3G .. Anyways, good site!

  24. We stumbled over here by a different web page and thought
    I may as well check things out. I like what I see so now i’m following you.

    Look forward to exploring your web page yet again.

  25. hey there and thank you for your information – I have certainly picked up anything new from right here.
    I did however expertise a few technical issues using this website,
    as I experienced to reload the website a lot of times previous
    to I could get it to load properly. I had been wondering if your web host
    is OK? Not that I am complaining, but slow loading instances times will very frequently affect your placement in google and can damage your high-quality score if ads and marketing with Adwords.
    Anyway I am adding this RSS to my email and can look out for much more of your respective interesting content.
    Ensure that you update this again soon.

  26. When I originally commented I seem to have clicked on the -Notify me when new comments are added- checkbox and now
    every time a comment is added I get four emails with the same comment.
    Is there an easy method you are able to remove me from that service?
    Thank you!

  27. Write more, thats all I have to say. Literally, it
    seems as though you relied on the video to make your point.

    You clearly know what youre talking about, why throw away your intelligence on just posting videos to
    your blog when you could be giving us something informative to read?

  28. Thank you for any other magnificent article. The place else may just anybody
    get that type of info in such an ideal method of writing?
    I’ve a presentation next week, and I’m on the look for such info.

  29. Hello, i think that i saw you visited my blog so i got here to return the favor?.I am trying to in finding
    issues to improve my web site!I guess its adequate to use
    some of your ideas!!

  30. Hey there, I think your site might be having browser compatibility issues.
    When I look at your blog site in Firefox, it looks fine but when opening in Internet Explorer, it has some overlapping.
    I just wanted to give you a quick heads up! Other then that, superb blog!

  31. Hey I know this is off topic but I was wondering if you knew of
    any widgets I could add to my blog that automatically tweet my newest twitter updates.
    I’ve been looking for a plug-in like this for quite some
    time and was hoping maybe you would have some experience with something like this.
    Please let me know if you run into anything. I truly enjoy reading your
    blog and I look forward to your new updates.

  32. Do you have a spam issue on this website; I also am a blogger,
    and I was wondering your situation; we have developed
    some nice practices and we are looking to trade techniques with other folks, be sure to shoot me an e-mail if interested.

  33. Hello there! Do you know if they make any plugins to help with SEO?
    I’m trying to get my blog to rank for some targeted keywords but I’m not seeing very good results.
    If you know of any please share. Many thanks!

  34. I’m truly enjoying the design and layout of your site.
    It’s a very easy on the eyes which makes it much more enjoyable for
    me to come here and visit more often. Did you hire out a developer to create your theme?

    Excellent work!

  35. This design is wicked! You obviously know how
    to keep a reader amused. Between your wit and your videos, I was almost moved
    to start my own blog (well, almost…HaHa!) Great job. I really loved what you
    had to say, and more than that, how you presented it.
    Too cool!

  36. Just want to say your article is as surprising. The clearness in your post is simply excellent and i could
    assume you’re an expert on this subject. Well with your permission allow me to grab your RSS feed to keep updated with forthcoming post.
    Thanks a million and please keep up the rewarding work.

  37. I just like the helpful information you supply on your articles.
    I will bookmark your blog and check again right here regularly.
    I am reasonably sure I will be told plenty of new stuff
    proper here! Good luck for the following!

  38. We’re a gaggle of volunteers and opening a new scheme in our community.
    Your site offered us with helpful info to work on. You’ve done a formidable activity
    and our entire group will probably be grateful to you.

  39. It’s a shame you don’t have a donate button! I’d certainly
    donate to this brilliant blog! I guess for now i’ll settle for bookmarking
    and adding your RSS feed to my Google account. I look forward to fresh updates and will share this site with my Facebook group.
    Talk soon!

  40. Hey there I am so excited I found your blog page, I really found you by error, while I was searching on Aol for something else, Nonetheless I am here now
    and would just like to say thank you for a incredible post and a all round enjoyable blog (I also love the
    theme/design), I don’t have time to go through it all at
    the moment but I have saved it and also included your RSS
    feeds, so when I have time I will be back to read a lot more, Please do keep
    up the excellent job.

  41. I’ve been exploring for a bit for any high-quality articles or blog posts on this
    kind of area . Exploring in Yahoo I at last stumbled upon this site.
    Studying this information So i’m glad to convey that I’ve an incredibly just right uncanny feeling I discovered
    just what I needed. I so much for sure will make sure to don?t fail to remember this web
    site and give it a glance regularly.

  42. Howdy I am so happy I found your blog, I really found you by mistake, while I
    was browsing on Yahoo for something else, Anyhow I
    am here now and would just like to say cheers for a incredible post and
    a all round entertaining blog (I also love the theme/design), I don’t have time to go through it all at the moment but I have book-marked
    it and also added in your RSS feeds, so when I have time I will be back to read more, Please do keep
    up the excellent work.

  43. My partner and I stumbled over here different web page and thought I might
    as well check things out. I like what I see so now i’m following you.

    Look forward to looking into your web page yet again.

  44. I have been exploring for a little bit for any high-quality articles or
    weblog posts in this sort of area . Exploring in Yahoo I at last stumbled upon this site.
    Studying this info So i am happy to exhibit that I’ve a very just right uncanny feeling I discovered just what I needed.
    I such a lot unquestionably will make certain to
    don?t put out of your mind this site and give it a glance regularly.

  45. Good day! I know this is kind of off topic
    but I was wondering if you knew where I could locate a captcha
    plugin for my comment form? I’m using the same
    blog platform as yours and I’m having difficulty finding one?
    Thanks a lot!

  46. I’m really enjoying the design and layout of your blog.

    It’s a very easy on the eyes which makes it much more enjoyable for me to come here and visit more
    often. Did you hire out a developer to create your theme?
    Fantastic work!

  47. Unquestionably consider that which you stated.
    Your favorite justification appeared to be at the internet
    the simplest thing to understand of. I say to you, I certainly get
    irked whilst people consider concerns that they just do not realize about.
    You managed to hit the nail upon the highest and defined out the whole thing
    with no need side effect , people can take a signal. Will likely be again to get more.

    Thank you

  48. Hello are using WordPress for your blog platform?
    I’m new to the blog world but I’m trying to get started
    and create my own. Do you require any coding knowledge to
    make your own blog? Any help would be really appreciated!

  49. Nice post. I was checking constantly this blog and I am
    impressed! Very useful info specifically the last part 🙂 I care for such information much.
    I was seeking this certain information for a very long time.
    Thank you and best of luck.

  50. Today, I went to the beach with my kids. I found a sea shell and gave it
    to my 4 year old daughter and said “You can hear the ocean if you put this to your ear.”
    She put the shell to her ear and screamed. There was a hermit crab inside and it pinched her ear.

    She never wants to go back! LoL I know this is totally off topic
    but I had to tell someone!

  51. Excellent post. I was checking continuously this weblog
    and I’m inspired! Extremely helpful information specifically the closing section 🙂 I maintain such information much.
    I used to be looking for this particular info for a long time.

    Thank you and best of luck.

  52. You actually make it appear really easy along with your presentation but I find this matter
    to be actually something which I think I would by no means understand.
    It kind of feels too complicated and very broad for me.
    I’m having a look forward to your subsequent submit, I’ll try to get the cling of it!

  53. Does your blog have a contact page? I’m having a tough time locating it but,
    I’d like to shoot you an email. I’ve got some suggestions for
    your blog you might be interested in hearing. Either way, great website
    and I look forward to seeing it grow over time.

  54. Good day! I could have sworn I’ve visited your blog before but after going through some of the articles I realized it’s new to me.
    Anyhow, I’m certainly delighted I discovered it and I’ll be book-marking it and checking back regularly!

  55. Howdy! This blog post couldn’t be written much better! Looking through this post reminds me of my previous roommate!

    He always kept preaching about this. I will forward this information to him.
    Pretty sure he’s going to have a great read. Many thanks for sharing!

  56. Wonderful article! This is the type of information that are supposed to be shared across the
    net. Disgrace on the search engines for no longer positioning
    this post upper! Come on over and talk over with my web site
    . Thanks =)

  57. Hello! I understand this is somewhat off-topic however I had to ask.

    Does running a well-established website such as yours require a massive
    amount work? I’m brand new to writing a blog but I do write in my diary every day.
    I’d like to start a blog so I will be able to share my own experience and thoughts online.
    Please let me know if you have any recommendations or tips for brand new aspiring blog owners.
    Thankyou!

  58. I used to be recommended this website by way of my cousin. I’m no longer sure whether or not
    this publish is written by means of him as nobody else know such special approximately my difficulty.
    You are amazing! Thanks!

  59. Oh my goodness! Incredible article dude! Thanks, However I am experiencing troubles with your RSS.
    I don’t know why I cannot subscribe to it. Is there anybody having the
    same RSS issues? Anyone that knows the solution will you kindly respond?
    Thanx!!

  60. Simply desire to say your article is as astonishing.
    The clearness in your post is simply excellent and i can assume you’re an expert on this subject.
    Fine with your permission let me to grab your feed to keep up to date with forthcoming post.
    Thanks a million and please continue the gratifying work.

  61. When I originally commented I appear to have clicked on the -Notify me
    when new comments are added- checkbox and now whenever a comment is added I recieve 4 emails with the same comment.
    There has to be a way you can remove me from that
    service? Thank you!

  62. I am not sure where you are getting your info, but good topic.

    I needs to spend some time learning much more or understanding more.

    Thanks for fantastic info I was looking for this info for
    my mission.

  63. you’re really a excellent webmaster. The web site loading speed is
    amazing. It sort of feels that you are doing any distinctive trick.
    In addition, The contents are masterwork.
    you have performed a excellent process on this matter!

  64. I was curious if you ever thought of changing the layout of your site?
    Its very well written; I love what youve got to say. But maybe you could a little more in the way of content so
    people could connect with it better. Youve got an awful lot of text for only having 1 or 2
    pictures. Maybe you could space it out better?

  65. I don’t even know the way I stopped up right here, but I believed this put up was great.
    I do not recognize who you are however definitely you are going
    to a famous blogger for those who aren’t already.

    Cheers!

  66. Hello there, I found your website by way of
    Google at the same time as searching for a similar subject, your web site came up, it seems
    to be good. I’ve bookmarked it in my google bookmarks.

    Hello there, just turned into alert to your blog thru Google, and
    found that it’s truly informative. I am going to be careful for brussels.
    I’ll appreciate if you happen to continue this in future.
    Lots of other people will be benefited from your writing.
    Cheers!

  67. Great goods from you, man. I have understand your stuff previous to and you’re just too fantastic.
    I actually like what you’ve acquired here, really like what you are saying and the way
    in which you say it. You make it entertaining and you still care
    for to keep it wise. I can’t wait to read much more from you.
    This is actually a terrific website.

  68. I got this web site from my pal who informed me about this website and now this time I am
    browsing this website and reading very informative articles or
    reviews at this time.

  69. Hey there! This is kind of off topic but I
    need some advice from an established blog. Is it very difficult to set up your own blog?
    I’m not very techincal but I can figure things out pretty fast.
    I’m thinking about making my own but I’m not sure
    where to begin. Do you have any ideas or suggestions?
    With thanks

  70. I do not even know how I finished up right here, however
    I assumed this submit used to be great. I do not understand who you’re however definitely you’re
    going to a famous blogger should you are not already. Cheers!

  71. Fantastic items from you, man. I have take note your
    stuff prior to and you are just extremely excellent.
    I really like what you have got here, certainly like what
    you are stating and the way during which you say it.
    You make it entertaining and you continue to care for to stay it sensible.
    I can’t wait to read far more from you. This is actually
    a tremendous website.

  72. Does your website have a contact page? I’m having a tough time locating it but,
    I’d like to send you an e-mail. I’ve got some suggestions
    for your blog you might be interested in hearing.
    Either way, great site and I look forward to seeing it develop over time.

  73. After looking into a number of the blog articles on your blog, I seriously appreciate your technique of blogging.
    I bookmarked it to my bookmark site list and will
    be checking back in the near future. Please visit my web site
    too and let me know your opinion.

  74. I see You’re actually a just right webmaster. This site loading velocity is
    amazing. It sort of feels that you are doing any unique trick.

    Furthermore, the contents are masterpiece.
    you have done a magnificent activity on this matter! Similar here: najtańszy sklep and also here: E-commerce

Leave a Reply

Your email address will not be published.


*


This site uses Akismet to reduce spam. Learn how your comment data is processed.